This list could go on forever...but not all of the "why" questions are amusing. For the past two and a half years, we've wrestled with some tough questions, but I have been able to mostly avoid them with simple explanations that I decided were good "for now." I was caught off guard with another one of those last night. "But why do I have to wear my boot, Mommy?"
Since Ava's bout with meningitis and subsequent stroke in January of 2008, she has had different braces to support the weakness in her right calf muscle and heel cord. She used to have to wear a brace all day but not at night. Since she started receiving Botox injections last September, she rarely wears her daytime brace, but has a night brace that's supposed to keep her muscles from tightening up overnight. She just had another Botox injection a couple weeks ago, so it's very important for her to be wearing her night brace, especially right now. I tried the old "because it will help your muscles feel better" that used to work well enough but at almost 4, she knows there should be more to the answer.
After a couple more attempts at skirting the issue, I finally tried to explain. "When you were really little, your leg was hurt and you need to wear your "boot" until it gets better. Just like when you get a scrape on your arm and you wear a band-aid until it gets better. Your leg will take a lot longer to heal, though."
Ava talking to Carli on the phone after her latest Botox injection |
"Why doesn't Carli have to wear a boot?" I should have seen this one coming too... "Well, her leg wasn't hurt. But remember your friend Evan? He has boots too that he wears sometimes." Thank Goodness for Evan, because she seemed to remember that she'd seen him wearing his boots before too! She was still skeptical, and didn't end up wearing her boot last night. (She had to wear her daytime boot today instead.) But it took every ounce of my energy to make it downstairs before I lost it.
Once we settled into our therapy schedule a couple years ago, I made it my mission to never treat Ava differently than Carli and to make sure everyone else we came in contact with was following suit. To the best of my knowledge, this has worked pretty well. We don't make excuses if Ava doesn't pick something up as quickly as Carli might or ever let her say "can't." But I sense we're moving into a new, tougher chapter of "why's." With God's help, and several boxes of Kleenex, I pray we find the right answers at the right time.
I know lots of parents have this same problem with their children, but I'm sure it's even more pronounced with twins. B, you and Nick are so very strong and inspirational.
ReplyDeleteBrandi, you are such a strong person and a remarkable mom. Ava has such love and support surrounding her; she will grow to be a delightful young lady, all because of your love and support for her. Keep your head up, and know those girls are absolute dolls, and their differences make them even more wonderful! Love you!
ReplyDeleteHang in there, Brandi--I know it's tough. I often feel that I'm the one asking why, instead of Evan. And just now you've made me think (also with tears!) that maybe this is "why"--so every other little kid who has to endure what most don't can look at another kid just like them and feel like they belong. You can use Evan as an excuse all you want. :)
ReplyDeleteYour girls are tough cookies just like their mom. Its a tough situation and it sounds like you are doing a great job handling it. Most people can't believe Ava is the same little girl who I asked them to pray for when she was sick. She has come so far and she wouldn't be where she is today without you and Nick and your love and support. Give me a call if you need to talk or need to get away!
ReplyDeleteIt's really hard for our kids to get smarter isn't it? Ava is amazing and is so lucky to grow up with a mom who is willing to tackle the tough subjects. It probably won't get any easier as they grow up, but know you have lots of friends who love you all.
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